Monday, June 29, 2020

Lucy Heart Update

Random pictures at first...Heidi has been keeping up with volleyball drills in the backyard and lifting some weights too... I think she is feeling buff - hehe


Lucy during her reading intervention classes this summer. Her reading is finally taking off!


We had Lucy's heart appointment. We saw a new doctor as they opened a clinic really close to our home and the doctor we have been seeing was promoted to head of the department. Lucy was a rockstar as always and even didn't mind wearing her mask the whole time. It does not seem to bug Lucy to wear a mask - which is awesome.


 Lucy selfies...

The appointment went well. We have always been monitoring her pulmonary valve for leaks since her repair of it. It was the same, which is a win - not any better and not any worse. We will continue to monitor that. The doctor also said he was very impressed with her coarc repair and the murmur related to that is almost gone. (She still has a murmur related to her valve issues) He said he hasn't seen a more perfect repair than hers. He did discover a new issue. Nothing to go stress over but something we will monitor. Her ascending aorta is mildly dilated. He said the range was 1.6 to 2 for regular and she is 2.3. If we see it widen to 4, she would need meds and anything above that would require replacement surgery. He said we are a long way from that and most likely will never get there. Lucy is growing as expected and a healthy girl!

The subscription boxes are great! The girls have been completing their activities to help fight boredom during the week. Heidi is currently making clay pots!


Selfie by Lucy - she is modeling her new sunglasses!


Food Truck Saturday...edible cookie dough and a mix food place. Fun as always and gives us something to do!


 Ending with two random pictures of Remy... Remy falling asleep in an uncomfortable position...


And Remy sitting very oddly on the chair...