Wednesday, August 15, 2012

Bubble Baby Lucy


We are just hanging out here in the NICU. An update on our bubble baby, she still is breathing very quickly and her lungs are very wet. She isn't going backwards with progress but she isn't moving forward either. She is very content and happy, just breaths quickly. They are bringing in a lung specialist today to join the large NICU group of doctors and specialists. I consider myself to be a half way of an intelligent person - but you get in this room of the 15 doctors and well - I find myself saying stupid words like awesome and making really bad jokes. Awesome.

The other item she has is a heart murmur - very minor and isn't connected to the breathing issue. But since she is here, they are doing fetal echos and other tests. She does have a narrowing of an artery and her valve that should have closed by now, still hasn't. (All babies are born with it open) They aren't too concerned about why it isn't closed yet, but they just want to make sure when it does close, it doesn't affect the section of the artery that is narrow. That is my translation of the heart doctors - they would probably laugh at my interpretation. 

Let's talk numbers - here is a snapshot of her monitor. The two numbers we have been watching are the 104 and the 97. The 104 is her breathing. It should be in the 50 to 60 range. yep. She is breathing a wee bit fast. The second number of 97 is how her blood is oxygenating (I'm not sure if that is the correct word - but run with it) It needs to be above 95. So she is good there, BUT its only because she is in the bubble. She needs to be able to keep that number on her own and be breathing slower. The other numbers are 131 is heartrate - nice and calm and good. and the 94 over 55 I think is her blood pressure which is good. So when we watch the monitor, we care about really only two we care about.


I can't take a lot of pictures right now - pretty dark room - no flash rule and well - she is chilling in a bubble. She still looks happy as a clam. She is not distressed at all. I guess her weight is up too - my mom asked the nurses if she thought this was a spa or something - just hanging out. We really hope for some progress here in the next few days - but as of today - I think we will be hanging out for awhile. At least the room is large and very nice and all the nurses and doctors have been amazing. Don't get me wrong - all we want is Lucy to be home and healthy - but at least she is in really good hands and honestly - she is one content happy kiddo chillin in her bubble.

I had to take a picture of her tiny cute foot sticking out of her bubble. She has such small little toes - so cute!


Our bubble baby Lucy...